SUMMARY
The American Academy of Pediatrics is an organization of 67,000 pediatricians committed to the optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.
The Senior Director, Child Health Improvement through Longitudinal Data (CHILD) Registry is responsible for leading and coordinating all aspects of registry operations and for implementing the registry strategy and growth plan. The primary purpose of the CHILD registry is to track childhood health and illness trends, which would help draw conclusions on a number of areas, including gaps in care, treatment options and regional variations in care. The data also will help inform the creation of AAP guidelines and policies and provide guidance to payers. Furthermore, AAP members could use the registry’s data to help create reports for quality improvement projects and regulatory requirements. The Senior Director oversees the registry staff team and leads related advisory groups to build and maintain a high functioning database. Finally, this role will serve as the primary point of contact for all CHILD Registry activities, including the establishment of technical specifications, data analytics, and operational procedures to ensure compliance with regulatory and privacy requirements.
RESPONSIBILITIES
- Execute the registry business plan in fulfillment of established strategy, maximize AAP resources to achieve registry goals, and ensures program financial stability by developing and managing budgets
- Ensure seamless collaboration with registry participants/users, consultants, partners, registry/platform providers, electronic health record (EHR) vendors, and AAP member groups related to the development, implementation, and operation of the registry with the ultimate goal towards establishing data standardization, integration, and advanced collection efficiencies
- Oversee the execution of the Master Service Agreement and scope of work documents with registry the vendor
- Oversee all registry activities, including staff responsible for onboarding registry participants and data collection/submission and analysis to ensure excellent data quality and security
- Establish business and operational processes for required legal agreements for participating sites and ensure the usability, consistency, accuracy, integrity, security, privacy, and availability of collected data
- Coordinates outreach to stakeholders including federal agencies, third party payers, private and government regulatory agencies, certification of pediatric EHRs, and oversight groups
- Lead development of quality metrics and regulatory reporting. Ensure compliance with national and state physician clinical registry specifications and national reporting and submission requirements for payment and quality
- Oversee the development and maintenance of standards, policies, and training materials for registry operations Anticipate and identify areas of change, assesses potential impact, propose strategic adaptability, and lead and oversee change management efforts
- Ensure maintenance of administrative data needed to operate the registry software used by participating sites and enacts policies and safeguards to ensure all users are in compliance with access privileges
- Supervise and mentor assigned staff and encourage a work environment that promotes inclusion and belonging of all staff. Ensure staff operate in a fiscally prudent manner, maintain confidentiality, operate with the highest ethical standards, and provide excellent service to members and volunteers
- Coordinate outreach and recruitment efforts to engage AAP members, practices, hospitals, healthcare systems, and other sources of child Oversees marketing activities to generate interest in the CHILD registry from potential participants
- Work collaboratively with vendor partner on data monetization (subscription) efforts
- Collaborate with AAP Development staff on fundraising for the registry, as well as development and execution of corporate relations strategies
- Perform other related duties as assigned
SKILLS & KNOWLEDGE:
- At least seven years’ related experiencing managing and/or implementing a patient registry and/or data science/informatics operations experience required, including performance measurement, quality improvement, data analysis and data applications, as well as supervising staff and managing large-scale projects
- Must have an understanding of healthcare regulatory and technology environment and experience coordinating work on large-scale projects among multiple constituents (e.g., staff, board members, vendors, clients, physicians, learners, etc.)
- Experience building an enterprise-wide system for clinical data (including EHR data integration, PHI privacy and security, release cycles, acceptance testing, and working with a multi-tenant cloud-based platform) strongly preferred
- Excellent interpersonal, organizational, communication, fiscal management, negotiation, diplomacy, critical thinking, and verbal/written communication required
- Must be skilled in leading and developing staff, as well as promoting and maintaining a positive and cooperative team-oriented work environment, with a commitment to equity, diversity, and inclusion
- Strong technical acumen essential with proficiency in MS Office and registry platforms and the ability to learn and apply new technologies to advance work initiatives; experience with virtual meeting platforms (e.g., WebEx, Teams) and budgeting software (e.g., Acumatica) preferred
- Must be a strategic and innovative thinker, take initiative to advance a large portfolio of initiatives, manage multiple priorities simultaneously, and collaborate effectively with various internal and external constituents
- Must have solid understanding of quality improvement principles and knowledge of the health care industry and patient data protection, access, and reporting compliance and regulatory requirements
- Some travel and evening/weekend work required, as well as the ability to be flexible with work schedule to accommodate physicians’ availability
EDUCATION & EXPERIENCE
Bachelor’s degree clinical research management, health care administration, public health, or related field required
Master’s degree in related field (MS, MBA, MPH, MHSA) preferred
Contact: Qualified candidates expressing interest in the opportunity, please submit a resume/CV and cover letter with Senior Director, CHILD Health Registry in the subject line to: Willie Carrington at AAP@carringtonandcarrington.com.
